TMDCN delivers a range of programmes designed to improve the lives of people living with muscular dystrophy and other neuromuscular conditions. Through education, advocacy, research, and community engagement, we work to improve access to care, promote inclusion, and empower individuals and families across Nigeria.

Awareness & Community Outreach Programme

We raise awareness of muscular dystrophy and other neuromuscular conditions through community outreach, public education campaigns, school visits, health talks, media engagement, and awareness events. Our aim is to improve understanding, encourage early recognition, and reduce stigma.

Disability Inclusion Programme

We promote the inclusion and participation of people living with disabilities by advocating for equal opportunities, accessible environments, inclusive education, employment, and healthcare. We work with communities, organisations, and policymakers to help remove barriers to inclusion.

TMDCN Connect Network

TMDCN Connect Network is our peer support programme, bringing together individuals living with muscular dystrophy, their families, and carers. The programme provides a safe and supportive community where members can share experiences, receive emotional support, access reliable information, and connect with others facing similar challenges.

To know more about our Connect Network, including how to connect, click the button below

TMDCN Community Conversations

Family & Carer Support Programme

We recognise the important role families and carers play in supporting individuals living with muscular dystrophy. This programme provides information, guidance, emotional support, and practical resources to help families and carers confidently manage the challenges of daily care.

Patient Registry Programme

Our Patient Registry Programme securely collects information from individuals living with muscular dystrophy and other neuromuscular conditions in Nigeria. The registry supports research, improves understanding of these conditions, and helps ensure Nigerians are represented in national and international research initiatives.

Healthcare Professional Education Programme

Improving knowledge and awareness among healthcare professionals is an important part of TMDCN’s work.

Through our Healthcare Professional Education Programme, we seek to increase understanding of muscular dystrophy and related neuromuscular conditions, including awareness of early signs, diagnosis, management, rehabilitation and the needs of affected individuals and families.

We welcome opportunities to work with hospitals, health facilities, professional groups, training institutions and other organisations to deliver educational and awareness activities.

Research & Clinical Collaboration Programme

TMDCN welcomes appropriate collaboration with healthcare professionals, researchers, hospitals, universities and other institutions working to improve understanding, diagnosis, care and research relating to muscular dystrophy and neuromuscular conditions.

Our Research & Clinical Collaboration Programme seeks to strengthen connections between the patient community, healthcare professionals and researchers and to support responsible research that can improve outcomes for affected individuals.

Patient Referral Programme 

We work with healthcare professionals to improve awareness, understanding and support for people living with muscular dystrophy and related neuromuscular conditions. Healthcare professionals can refer patients to TMDCN for information, support and access to relevant services and programmes. Referrals also provide an opportunity to connect eligible individuals with the TMDCN Patient Registry, helping us reach more people affected by these conditions and strengthen our understanding of the neuromuscular community in Nigeria. We also welcome opportunities to collaborate with healthcare professionals through our Healthcare Professional Education and Research & Clinical Collaboration programmes.